So at his two year check up in June, when he still wasn't talking (he said "go" and you could tell by his intonation that he was counting, but that's it) our doctor referred us to the local early intervention program, Kids on the Move (KOTM). They came out and did their assessment. Jack was in the 1% in expressive language (communicating to others) and in the 2% in receptive language (understanding others), but not autistic. So we started with a developmental specialist and a speech therapist. In our second visit with the DS she noticed that when Jack got excited he started running around our couch. She asked me about it. I told her all our kids did it. She played with him a little more, and decided an occupational therapist needed to come evaluate Jack, that there was something more than just delayed speech.
So the OT came out and did his evaluation and Jack was diagnosed with Sensory Processing Disorder or SPD. You can go out to the internet and learn lots more if you're interested, but essentially, your nerves can send too many signals, not enough, or the wrong signals to your brain. This is a relatively newly diagnosed disorder for several reasons. One, autistic kids often have it, and it was thought to be part of autism, not a separate disorder. It can also incorrectly be diagnosed as ADD or ADHD, or several other disorders. For Jack, he is a sensory seeker, he is under-sensitized so he is constantly trying to meet his sensory needs. Because his brain is constantly seeking stimulation, it hasn't focused on language learning, hence Jack's delayed speech. He is however overstimulated in his mouth, which is partly why he's a picky eater and on his skin, so he doesn't like long sleeves, jackets, hats, bibs, having his sleeves rolled up or clothes that don't fit just right.
So we have the developmental specialist come twice a month, the speech therapist come twice a month and the occupational therapist come once a month. As if I wasn't busy enough. But I'm happy to have an action plan and hopefully we will improvement.



2 comments:
Rough! It is good to know, so that you can work on it and fix what is fixable, but still. I get so discouraged when we start things like this. Hopefully all of the therapy will help!
I feel so bad that it's keeping you so so busy. It's so hard but you're doing so awesome with him.
And when he said my name when I was there for Christmas, it was just magical. He is a sweet little guy and I'm so happy you're blessed to be wise enough and active enough to get him what he needs, even though i know it must be totally exhausting for you.
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